Saturday, July 24, 2010

Home, sweet, sweet Home

You know that feeling you get when you walk in the door after being on vacation for a while. Today was kinda like that... times 50. There was a dash of desperation in there.

Today, Utah celebrates the freedom of coming into the Salt Lake Valley.
Today, Kezia celebrates freedom, too.
Freedom from cords, wires, needles, IVs.
Freedom from pokes, prods, and stickers on her chest & legs.
Freedom from endless questions, tests & bright lights at night.

They are still waiting on a couple of lab tests, but for now, STV seems to be the culprit. They showed me how to check her heart rate with a stethoscope and if it's over 200, I have to call the hospital - and I have a follow-up visit with the electrophysiology cardiologist in the next 2-3 weeks. She's on Propranolol every 8 hours for the foreseeable future.
She sure seems to be much better, though. The sweats are gone, the rash is almost gone, she's urinating more normally, and crawling all over & pulling up on things. She's back to being our busy, blue-eyed, beautiful girl!

As we walked outside to leave, and I took the first breath of fresh air in 4 days, I had a number of feelings:
Hope... that I won't be coming back there (except for her follow-up appts)
Appreciation... for all those who work and volunteer at that sacred place.
Anticipation... to be home after 4 days & sleep in my own bed.
but most of all GRATITUDE... that I get to go home with my precious child. For I know... not everyone can.

Thank you for your thoughts, prayers, and comments. We truly appreciate them and are looking forward to life getting somewhat back to normal.


Tiff Meister said...

I'm sure you'll hear this from everyone but we'll continue to keep you in our prayers. We're sure glad Kezia is okay. Love you!

About Us said...

YAY Heidi! I'm so happy you guys got to go home! I hope things continue to go well & that you can get back to a normal life! :)

Ryan and Shannan Hoffman said...

I agree with you, every time I go to Primarys I am reminded that it is a sacred place. And it's so easy to see the suffering of the other kids there, and know those doctors are there to help them and care so much.

So glad you made it home. Try to breathe... (I am perhaps not the best example at saying that...) If you need anything, please call me, I would love to help. We will continue praying that all will be well.

Becka said...

I'm so glad you're home! What a blessing. I hope she's continues doing well and this is just a small part of her life.

Clara has a heart condition too. We found it when she was 6 months old and have had to do a lot of the same tests. I don't know exactly what you've got through but I can empathize. I'll continue to pray for little Kezi.

Lena Baron said...

I'm so glad she's home and well! Keep us posted as you learn more! Love you!

Johanna said...

oh Heidi, I was so sad to hear about your sweet baby. I am glad that everything seems to be better or at least getting better. We will keep you in our prayers for sure.

Atherley Crack Ups said...

wonderful news!

diana said...

Haven't been keeping up with the happenings but, so glad to hear Kezia is doing okay. Thoughts & Prayers go out to you guys. Miss you around here.