You know that feeling you get when you walk in the door after being on vacation for a while. Today was kinda like that... times 50. There was a dash of desperation in there.
Today, Utah celebrates the freedom of coming into the Salt Lake Valley.
Today, Kezia celebrates freedom, too.
Freedom from cords, wires, needles, IVs.
Freedom from pokes, prods, and stickers on her chest & legs.
Freedom from endless questions, tests & bright lights at night.
They are still waiting on a couple of lab tests, but for now, STV seems to be the culprit. They showed me how to check her heart rate with a stethoscope and if it's over 200, I have to call the hospital - and I have a follow-up visit with the electrophysiology cardiologist in the next 2-3 weeks. She's on Propranolol every 8 hours for the foreseeable future.
She sure seems to be much better, though. The sweats are gone, the rash is almost gone, she's urinating more normally, and crawling all over & pulling up on things. She's back to being our busy, blue-eyed, beautiful girl!
As we walked outside to leave, and I took the first breath of fresh air in 4 days, I had a number of feelings:
Hope... that I won't be coming back there (except for her follow-up appts)
Appreciation... for all those who work and volunteer at that sacred place.
Anticipation... to be home after 4 days & sleep in my own bed.
but most of all GRATITUDE... that I get to go home with my precious child. For I know... not everyone can.
Thank you for your thoughts, prayers, and comments. We truly appreciate them and are looking forward to life getting somewhat back to normal.